SwissRITA at a Glance

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Mission

Our goal: to provide the best possible care and improve the situation of patients

SwissRITA is a network of professionals and patient organizations – an expert consortium for rare immunological and rheumatological diseases, dedicated to providing the best possible care and improving the situation of patients and their families. SwissRITA was founded in 2024 following its recognition by KOSEK (National Coordination for Rare Diseases).

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Focus Areas

Our key focus areas are:

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Improving collaboration between all healthcare providers and patients.

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Ensuring access to appropriate diagnostics and cutting-edge therapy for all patients in Switzerland with rare immunological diseases.

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Developing and recommending expert guidelines for diagnosis and treatment.

04

Continuously developing the network of healthcare professionals and patient organizations.

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Promoting visibility of the expertise within the SwissRITA network and its members.

06

Fostering the exchange of new scientific knowledge and practical experience.

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Executive Board

Meet our board members

Mary Louise Daly
Universitäts-Kinderspital beider Basel
PD Dr. med. Federica Vanoni
Ente Ospedaliere Cantonale Bellinzona
Dr. med. Katerina Theodoropoulou
Centre hospitalier universitaire vaudois
PD Dr. med. Urs Steiner
Inselspital Bern
Prof. Dr. med. Johannes Roth
Luzerner Kantonsspital
Prof. Dr. med. Mike Recher
Universitätsspital Basel
Prof. Dr. med. Jana Pachlopnik Schmid
Universitäts-Kinderspital ZürichImmundefekte
PD Dr. med. Thomas Neumann
Kantonsspital St.Gallen
Patricia Luck
Kinderspital Zürich
Dr. med. Charlotte Girard-Guyonvarc’h
Hôpitaux Universitaires Genève
Claudia Fässler
SVAI, schweiz. Vereinigung für angeborene Immundefekte
Prof. Dr. med. Oliver Distler
Universitätsspital Zürich
Dr. med. Géraldine Blanchard-Rohner
Hôpitaux Universitaires Genève

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Working Groups

Overview of specialist groups

Newborn screening for severe T-cell deficiencies
Maarja Soomann
Patients as research partners
Muriel Elhai
Still's disease
Charlotte Girard
Specialised nurses for rare diseases
Mary Louise Daly
Study of the patient pathway
Urs Steiner
Diagnostic standards
Johannes Roth
Support with billing for medical services
Not yet known

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Rare Disease Representants

Representatives for rare diseases

Pediatric Rheumatology Group

Leitung:

Andreas Wörner

Stellvertretung:

Jana Pachlopnik Schmid

SGR

Leitung:

Charlotte Girard

Stellvertretung:

Oliver Distler

SSAI

Leitung:

Mike Recher

Stellvertretung:

Johannes Trück

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Statutes

Our Statutes

Our statutes provide a transparent overview of the core values, goals, and structures that guide our work and our community.

To the statutes

In Focus

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19.9.25

Introducing SwissRITA

SwissRITA is a KOSEK-recognized reference center for rare immunological, autoinflammatory, and autoimmune diseases.

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19.9.25

First SwissRITA General Assembly

On June 20, 2025, members and partners of our network met in Bern for exchange and joint development.

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19.9.25

Expert Leadership by Experienced SwissRITA Board Team

Our board combines expertise from clinical care, research, and patient representation in the field of rare immune diseases.