We are developing collaborative medicine to improve diagnosis, management and quality of life for patients with rare immunological, autoinflammatory and autoimmune diseases.
To provide truly tailored care, we place patients at the center of every step of the process.
Through this initiative, we pursue the following goals:
This collaborative approach aims to transform medicine and research sustainably, keeping patients at the center of the process.
Patient organizations develop and recommend evidence-based guidelines that integrate the perspective of Patient Research Partners (PRPs).
We are continuously expanding our network of healthcare professionals, researchers, and Patient Research Partners (PRP).